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Clacton: Logan, 4, diagnosed with million-to-one disease
9:00am Saturday 2nd March 2013 in News
A CLACTON boy has been diagnosed with a rare million-to-one disease leaving his parents desperate for help and advice.
Logan Curtis, 4, was diagnosed with rare brain disorder Rasmussen’s Encephalitis.
The disease causes him to suffer seizures and a form of dementia.
He is also starting to lose motor skills on his left side and is prone to extreme and erratic behaviour.
Mum Tammy said: “It was a real conflict of emotions when he was diagnosed.
“On one hand we were relieved to finally know what was causing Logan’s behaviour, but we also know how serious this is.
“He can’t control what he does. He lashes out with violent outbursts without warning and doesn’t know that he has done anything wrong.
“This only affects one in a million people. No one even knows what it is. People have never come across it and even doctors have to look it up.
“We are struggling, and what makes it even harder is that we can’t find anyone local who knows anything about it or has any experience of it to give us support and advice.”
Logan is currently on a course of steroids, but it is likely that he will be forced to have invasive brain surgery.
He is unable to go to school due to the special care he needs.
Tammy and dad Gary are applying to Essex County Council and the NHS for help in dealing with Logan day-to-day.